Tag Archives: tb/hiv

They Go to Die: End of tour round-up

So the They Go to Die tour has finally come to an end and it’s safe to say it was a huge success! Apart from a few smaller screenings, all were very well-attended with a good number bursting at the seams. We had over 1000 action cards signed and hundreds of photos to add to our photo petition, a clear indicator of how effective the film was in engaging people in the issue.

The reason we teamed up with Jonathan Smith and took the documentary on the road was to inform people about TB in Southern Africa but most importantly it was get people to take action. The whole point of Jonathan’s film is to create change, as he says ‘what is the point in public health research if it has no public health benefit?’. So we bridged the gap between academia and advocacy and came up with 2 tangible ways in which the UK’s public could play their part in bringing this issue to the attention of UK decision makers. In brief these are to:

  1. Sign an action card/the e-petition urging Anglo Gold Ashanti (the largest mining company in Southern Africa and registered on the London Stock Exchange) to implement the PREVENT, FIND TREAT strategy for dealing with TB.
  2. Send a letter to your MP asking them to write to Justine Greening, Secretary of State for DFiD, urging her to contribute 30 million to TB REACH and to make a strong commitment to the Global Fund to fight HIV, TB and Malaria during its replenishment in September. Please go to www.dyingforgold.co.uk for more details on these actions and to download your MP letter.

Last week the tour came to a head with meetings in parliament and at DFiD as well as the final screening of They Go to Die at the London School of Tropical Hygiene and Medicine (LSHTM). The event at LSHTM featured an excellent high-level panel discussion with Lord Boateng, (the ex-high commissioner to South Africa), our own Aaron Oxley, Dr. Stephen Lawn from LSHTM, Jonathan Smith and chaired by Financial Time’s health and pharmaceuticals correspondent Andrew Jack. The group discussed in detail the importance of creating closer relationships between researchers, the media and policy makers in the fight to deal with TB.



But it wasn’t just in the UK that the issue of TB was being actively discussed last week.  In Swaziland a hugely important meeting took place with the objective of designing a strategy to ensure that Southern Africa gets back on track with its HIV and TB goals in the remaining 1000 days of the MDGs. The meeting culminated in the Swaziland Statement which was signed by SADC government leaders, health ministers, multilateral organisations and NGOs. The statement encourages multi-sector approaches to dealing with the diseases  and pledges to increase efforts in advocacy and fundraising to help halve HIV and TB death rates by 2015.

You can read the statement here http://www.stoptb.org/assets/documents/news/Swaziland%20Statement%20signed.pdf

Although the tour is over there are still a few more screenings scheduled in Glasgow, Reading and Liverpool. Check the Dying For Gold website www.dyingforgold.co.uk for updates.

World TB Day 2013: Media round-up

Following our blogpost yesterday you may well have been aware that yesterday was World TB Day. Leading media outlets in the UK certainly took note and here we provide a round-up of what some of them have been saying about the growing threat of TB both domestically and globally.

Friday saw some fantastic coverage in the Financial Times with a four-page health supplement entirely dedicated to TB. Articles covered topics ranging from the fight against HIV/TB co-infection, the problems surrounding TB in children and the need for funding for vaccine research.

The lead article states ‘Tuberculosis has failed to capture imaginations in the same way as HIV’ and, as a result, there has been a serious lack of financial commitments in fighting the second biggest infectious killer after AIDS. The article also highlights the vital role played by The Global Fund to Fight AIDS, TB and Malaria and the urgent need for renewed funding commitments from donors.

The BBC made note of the call from an international group of doctors and scientists for visionary leadership if we are to tackle TB effectively. Reporting on an article in The Lancet, the article highlights the growing problem of drug resistant TB strains largely as a consequence of complacent and neglectful governments worldwide.

It is so important that there is a complete shift in our thinking, particularly at a political level, about TB in order to ensure that we make significant strides in tackling TB and saving millions of lives. Along with this piece featured on the BBC, The Lancet has also published a Series of papers on TB to commemorate World TB Day 2013 that are well worth a read.

There was an informative piece in The Independent warning of the rise in the number of drug-resistant TB cases in the UK. The article notes that if the rise in TB continues at its current rate then by 2015 Britain will have more new cases each year than in the whole of the US. Somewhat encouraging is the fact that a government task force will be set up to tackle the problem. Dr Paul Cosford, director for health protection at Public Health England, has also said “TB will be a major priority for Public Health England”.

Finally, our friends at ACTION have also put together this great blog outlining a selection of stories and events leading up to World TB Day yesterday. To take a look at ‘the drumbeat to World TB Day’ just click here.

Target TB release ‘stop TB in my lifetime’ video

Brighton based Target TB, an NGO working on TB advocacy, treatment and care around the world, have released a great new campaign video called ‘stop TB in my lifetime’ the video is short, under four minutes, and clearly sets out the challenges faced in the fight against TB.

We would urge you to share this wonderful little video with everyone you know!

Politicians and researchers discuss how to build political will to tackle TB/HIV at Aids conference

Left to right: Jirair Ratevosian, Cathy Jamieson MP, Dr Gavin Churchyard, Dr Richard Horton, Pamela Nash MP

On Tuesday 24th July at the International Aids Society Conference in Washington DC, USA, the APPG on Global Tuberculosis hosted the workshop  ‘Politics of Persuasion:  Empowering and Engaging Elected Representatives to Tackle TB/HIV through Research’ . The session was facilitated by Dr Richard Horton, Editor-in-chief of the Lancet, the world’s leading general medical journal on infectious diseases.

An audience of over 200 heard from guest speakers including Cathy Jamieson MP, member of the APPG on Global Tuberculosis, Pamela Nash MP, chair of the APPG on HIV/AIDS, Jirair Ratevosian, Legislative Director of the Hon Barbara Lee – co-founder of HIV/AIDS Caucus in House of Representatives, US Congress, Gavin Churchyard, CEO of the Arum institute and Jennifer Woolly, Director of Advocacy at Aeras.  The panellists discussed the importance of gaining a clear understanding of how researchers can engage with parliamentarians using scientific evidence to build political support and help drive policy change at the national, regional and international level.

The session highlighted the importance of advocacy as an essential communication tool for both parliamentarians and at the community level to raise awareness of latest developments in research and better understanding their full potential and implications for combating TB and HIV. Panellists discussed and demonstrated through their presentations how researchers, advocates and parliamentarians can work in better synergy with each to address these twinned global epidemics.

Dr Richard Horton

In his opening remarks Dr Horton made a  poignant statement:

“why don’t we take TB more seriously when talking about HIV?  It is the leading killer of people living with HIV, accounting for 1 in 4 deaths, yet it does not get the attention the suffering and loss of life it causes warrants”.

Dr Horton pointed to an article in the Lancet published in 2010 called ‘The HIV-associated tuberculosis epidemic—when will we act?’, which highlighted that despite policies, strategies, and guidelines, the epidemic of HIV-associated tuberculosis continues to rage.  Dr Horton stressed how important engagement with policy makers was to ensure appropriate action was taken to address HIV-TB co-infection.

Continue reading

RESULTS May focus call announced: the search for an AIDS and a TB vaccine

We are pleased to announce That the next RESULTS focus call will take place on Tuesday 15th May at 7pm. The call is titled ‘The search for an AIDS and a TB vaccine‘. Our guest on the call will be Gavin Steadman-Bryce from the International AIDS Vaccine Initiative (IAVI).

IAVI is a global not-for-profit organization whose mission is to ensure the development of safe, effective, accessible, preventive HIV vaccines for use throughout the world.

Development of safe and effective vaccines against TB and HIV would represent the most important steps towards controlling and eradicating the spread of both diseases and vaccine development is currently progressing well. As RESULTS continues to support the work of organisations like IAVI and TBVI, we felt it important to take stock of the situations surrounding the development of those vaccines.

To join the call you will need to call 0844 8360 3600207 788 3000 or 0800 369 8888 and when prompted enter participant code 18718#

the call will have plenty of time for questions and is open for all grassroots volunteers to join. If you have any questions about the call or how to join, please get in touch with us at the office.

Journalism competition winner! Anna Gerrard Hughes: We need imagination in medicine

Today we have the winning entry from our student journalism competition. The piece was written by Anna Gerrard Hughes from Manchester university. We selected Anna’s piece out of the hundreds of entries due to its engaging tone, innovative style and advocacy potential. Anna will be joining RESULTS on a parliamentary delegation to South Africa to learn about TB/HIV co-infection and to report on her findings whilst in country.

Anna is the fifth year of a medical degree, currently taking a year out to do a masters at Manchester University in Humanitarianism and Conflict Response. Her interest in Global Health was part of the decision to do medicine in the first place, and she has kept a language up through her degree for this very reason. Her ultimate dream would be to do some international work in global health – perhaps emergency response – and write in a journalistic form about health and all its complications alongside practising as a doctor.

We need imagination in medicine

Doctor uses a stethoscope to examine a child

Image courtesy of Surface Forces under a CC Licence

In Edendale hospital, KwaZulu Natal, South Africa – just a stone’s throw away from where Nelson Mandela made his last, rousing speech before imprisonment – they are fighting a new and different battle against an ever-evolving, terrifying enemy: TB.

Recently, TB has been on the decline, with scientists and physicians alike allowing themselves to imagine a world without it, but with the unprecedented explosion in cases of HIV, particularly in areas such as KwaZulu Natal, TB has returned with a vengeance.

This escalation is all the more worrying because with it comes new killers – multi drug-resistant and extensively drug resistant TB – that have caused the debilitating illness to leap back into the international arena. Suddenly, an illness which was curable by a long, yet simple course of relatively cheap medications becomes one with very limited and expensive medical options, simply because people were not taking the right medications for the right amount of time.

TB and HIV are often partnered together. Both devastating illnesses, HIV has the ability to reduce your body’s own defences, giving TB more of a chance to take hold. TB starts with a terrible cough – sometimes blood-filled – and night-sweats so bad that sufferers complain of completely drenching the sheets. If left untreated, the cough can worsen to the point where moving is too much effort for already laboured breathing, and if oxygen and drugs are not available, many patients are physically unable to cope with this for very long.

The chance of travelling this horrific, and relatively long, road to death is increased if the patient is co-infected with HIV, and increased if their access to medicine and enough food to strengthen their struggling bodies is hampered. Unfortunately, this is the case in many areas around the world.

Continue reading

Tuberculosis: Diagnosing the future by Prudence Jarrett

Today we feature the third of our four competition runner up entries. This piece comes from Prudence Jarrett.

“Prudence a fifth year medical student, currently studying for a BSc in International Health before finishing my medical training. Her interests are in global health and development, HIV and infectious diseases. In the future she plans to work for humanitarian aid organisations, as well as carry research and clinical work in infectious diseases in developing countries”

Tuberculosis: Diagnosing the future

Patience sits outside on a straw mat, ankles crossed, her back against the cool mud and wattle wall of her family home, helping her aunt snap beans for dinner in the hot dry hills of northern KwaZulu-Natal. She has grown thin and tired and is unable to work for long, preferring to lie on her side so the coughing hurts less.

No healthcare workers have been to the village recently, and, even if they had she thinks to herself, it might be months before they could treat her. Patience is not a real girl, but I have met ones like her. She represents one of the nine million people who were infected with tuberculosis in 2010 but hopefully not one of the more than a million of those who will die.

Tuberculosis is a disease symptomatic of poverty, but unlike some other infectious diseases, such as river blindness, where one simple intervention can save millions of lives, barriers to TB eradication lie at multiple levels. Drugs in use haven’t changed for decades and the vaccine remains only partially effective.

Another barrier is quick and accurate diagnosis. Current diagnostic techniques for TB are time-consuming and reliant on trained lab technicians and a well-co-ordinated health system. On getting to a health centre, which may be an expensive and exhausting distance away, Patience will have to provide several sputum samples, coughed up into little pots that are sent to the nearest laboratory.

Continue reading

Helen Parker – global health student journalism competition runner up!

We are delighted to announce the winner and four runners up of RESULTS UK and the Students Stop AIDS Campaign global health journalism competition. We will be showcasing each article and revealing the shortlist on the lead up to Christmas! Today, we would like to introduce our first runner up, Helen Parker.

“Helen is currently studying for an MSc in Natural Resource Management at Oxford, after graduating from Cambridge in July this year. She is committed to global health issues, and worked for VSO as an HIV and AIDS Peer Educator in China for 12 months.  She also worked for the Stop TB Partnership of the World Health Organisation in summer 2010.”

Curing the Sick Market – Harnessing the power of the private Tuberculosis drug market is an essential step in the fight against the epidemic

Do you know these stories? The first is a crying African child, alone in a grubby cot. She is ‘An AIDS Orphan’. Her parents died from HIV related Tuberculosis (TB). The second is an emaciated South Asian man, sitting in a rudimentary hospital bed, misery etched, hopeless. He is ‘A TB Sufferer’. He may well die of TB.

For many of us, these are the images, the histories and the issues that are associated with TB, propagated by media, NGOs and advocacy groups. The stories are the face of poverty and sickness in a distant place. They are important, because they inspire the empathy essential to encourage donations and drive campaigns for change. However, the dominance of TB victims in the popular consciousness can obscure the true drivers of the epidemic.
TB is one of ‘The Big Three’ diseases fought by The Global Fund, along with HIV/AIDS and Malaria. However, unlike HIV, TB is curable, and yet every year 1.4 million women, children and men continue to die from it. TB is the leading cause of death for people living with HIV/AIDS. TB is also the second most common infectious cause of death globally, and, unlike Malaria, can be found in central London and New York as well as Africa, Asia and other developing regions.

Global Fund Forced to Cancel Funding Round, Jeopardizing Health of Millions

The Global Fund to Fight AIDS, Tuberculosis and Malaria canceled plans to fund new disease programs until 2014, sparking a crisis in the response to world’s three biggest infectious killers.

November 23, 2011 – As a consequence of donor governments’ failure to fulfill their financial pledges to the Global Fund to Fight AIDS, Tuberculosis and Malaria, the fund’s Board cancelled plans to fund new grants to fight the three pandemics until 2014. The Board also announced it does not have the cash on hand to fund some previously approved grants. This financing shortfall has created an emergency in the international fight against AIDS, tuberculosis, and malaria-the world’s three leading infectious killers.

“Donors have triggered a genuine crisis in the response to the world’s three biggest infectious disease pandemics,” said ACTION Director Kolleen Bouchane. “Their failure to make good on their financial pledges to the Global Fund will absolutely mean lives lost. This is a devastating breach of responsibility that will greatly limit access to proven life-saving interventions. It is not clear that the scale of this potential tragedy is fully realized by political leaders.”

The emergency comes immediately on the heels of an announcement from the administration of President Barack Obama, which made supporting the rise of an AIDS-free generation an official goal of U.S. policy. Secretary of State Hillary Clinton made the announcement in a high-profile speech on November 8. The U.S. Government is the biggest donor to the Global Fund, providing roughly a third of the fund’s total resources.

“In the U.S., all eyes are now on President Obama to step in and respond to this emergency by rallying Congress and other donor governments to fulfill their obligations,” said Bouchane. “It is outrageous that the commitments and progress made over the last decade may now be fatally undermined by this funding shortfall, just as we were all beginning to talk seriously about the end of AIDS.”

The Global Fund is the world’s largest international financier of programs to treat TB and malaria, and the second-largest for HIV/AIDS. January 2012 is the 10th anniversary of the Fund’s existence.

In countries fighting these diseases around the world, governments and civil society organisations were well into the process of developing proposals to submit to the Global Fund for its upcoming round of grant funding. Proposals were to be reviewed and approved in 2012. The cancellation of new grant-making until 2014 will effectively halt programs that provide basic services to treat AIDS, TB, and malaria in countries most ravaged by the diseases.

In a small country facing major health challenges like Burundi, the impact could prove catastrophic. The Burundi national TB program is almost entirely funded through early grants from the Global Fund and was slated to apply for renewal funding next year. Other countries that were set to apply for new funding to continue expanding services include Botswana, Tanzania, Zambia, Malawi, Guyana, and dozens of others. All will be negatively impacted.

“With the cancellation of new grant funding, the whole fight against tuberculosis in the East African country of Burundi is in danger,” said Patrick Bertrand, of ACTION partner Global Health Advocates in France, which has ties to treatment programs across Francophone Africa. “People in Burundi will die unnecessarily from a curable disease as a consequence of this new funding suddenly evaporating. The ensuing drug shortages will almost certainly give rise to drug-resistant strains of TB, which no one will be able to stop from spreading.”

ACTION, founded to fight tuberculosis, is an international partnership of advocacy organizations working together to mobilize resources and influence policies to address urgent global health challenges. RESULTS UK is a partner in the ACTION project.

Winstone Zulu awarded Zambia’s highest honour

The tireless campaigning, advocacy and energy of our much loved friend and activist, Winstone Zulu, was yesterday recognised by the honour of Zambia’s President Sata granting him a posthumous President’s Insignia of Recognition.

This prestigious award – the highest available for a citizen – was awarded to Winstone as part of Zambia’s 47th Independence anniversary, a ceremony holding obvious significance in Zambian’s minds, where citizens are honoured for their distinguished service and contribution to civil society.

The President’s Insignia of Recognition is given to those Zambians who “have rendered valuable service worthy of recognition and to those who, by their loyal and meritorious conduct have been of exceptional benefit to the Republic of Zambia.”

Continue reading