Tag Archives: APPG on Global Tuberculosis

APPG on Global Tuberculosis launches report on drug-resistant tuberculosis

This week in parliament, the APPG on Global Tuberculosis (TB) launched a major new report that calls on the UK Government to take a two-fold approach to tackling the increasing public health threat of TB in the UK and worldwide.

‘Drug-Resistant Tuberculosis: Old Disease, New Threat’ identifies the main challenges facing the UK and the world and outlines a series of recommendations for swift action where the biggest impact can be made.

The report highlights concerns about drug-resistant TB  (DR-TB). Both developed and developing countries are witnessing a rise in DR-TB. Fifteen of the 27 highest burden countries are in the WHO European region, while in the UK DR-TB has doubled in the last decade. This is of great concern, not only because DR-TB is much more difficult to treat but also because, compared to ‘normal’ TB, it is much more expensive. The reports highlights that:

In the UK, treating a single case of DR-TB is at least £50,000 and in developing countries it can cost close to £6,000. This is compared to £5,000 (UK) and £15 (developing countries) for ‘normal’ TB cases.

In the report’s foreward, Andrew George MP (Chair of the APPG TB) made note of the fact that many consider TB to be a disease that has been consigned to the history books. The report reinforces the message that this is not the case. As Andrew George MP goes on to say:

The fight against TB needs a new sense of urgency and innovation; combined with sufficient funding – both in the UK and internationally – if we are to effectively tackle the ‘TB time bomb’.

Now is not the time to loosen the reigns in the fight against TB. We must do all we can to ensure that 1.4 million people per year do not continue to die of this preventable and treatable disease. In the report MPs make a number of recommendations to the UK Government which include calling for;

  • A comprehensive strategy to combat TB in the UK;
  • At least a doubling of the UK’s contribution to the Global Fund to Fight AIDS, TB and Malaria to address the threat of DR-TB in low- and middle-income countries;
  • Continued investment in TB research and development (R&D) into new drugs, diagnostics and vaccines.

Visionary political leadership and increased investments into TB control programmes are exactly what is needed to fight the disease and tackle DR-TB; the report makes this clear. We hope the UK Government and leaders worldwide take note and do all they can to help save millions of lives.

We urge to you read the report. You can access the summary version here and the full version here.

Dying For Gold tour updates from Warwick, Birmingham, Glasgow and Southampton

In the last 5 days we have ventured to the Midlands for screenings in Warwick and Birmingham, back to Scotland for the Medcin Global Health Conference and then back down to the South of England for a screening in Southampton last night! Tonight we are in Bristol,tommorrow in Poole, then back to London for the screening at the Ritzy Cinema on Wednesday night and the LSHTM event on the Friday evening.

Have a read below to see what we have been up to and remember to sign the petition, calling on Anglo Gold Ashanti to PREVENT, FIND and TREAT TB in their minees, if you havnt already.

Day 7: Warwick

We spent the majority of the morning working away in the dining room of our cozy Cambridge lodge. After lunch we headed for the university bubble of Warwick where we teamed up with student hub’s members Jo and Harshil. Whilst Saoirse and the student hub’s team flyered for the evening’s screenings Felix and Jonathan set up camp in the library cafe to work on their respective presentations for Medsin’s Global Health Conference on Thursday.

As it was the last day of term the evening’s screening was an intimate affair but the audience were engaged and asked lots of interesting questions. We discussed the BCG vaccine- its ineffectiveness in treating TB of the lungs and the progress in developing new vaccines. We also talked about the economic case for the mining companies to implement best practices for dealing with TB in the mines. The World Bank are currently doing a cost-benefit analysis of this situation and have estimated that the mining industry is losing out on around $783 million dollars in terms of treatment for miners who have contracted silicosis and TB; training up new workers to replace those who have become too ill to work; and the money lost in wages to those retrenched miners.

Staying in Birmingham tonight with Felix’s old chum.

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What is the UK’s role in the response to rising rates of drug-resistant TB?

On Wednesday 13th February, parliamentarians from the APPG on Global Tuberculosis held an oral evidence session with key Global TB experts as part of its inquiry into drug-resistant TB (DR-TB). Parliamentarians including Andrew George MP (Chair of the session), Nick Herbert MP, Baroness Masham of Ilton, Virendra Sharma MP, Cathy Jamieson MP, Annette Brooke MP and Michael Connarty MP heard from the following witnesses:

  • Dr Lucica Ditiu, Executive Secretary, Stop TB Partnership, World Health Organisation;
  • Dr Aamir Khan, Executive Director, The Indus Hospital, Pakistan;
  • Jason Lane, Senior Health Adviser (TB), Department for International Development (DFID);

Parliamentarians questioned the panellists on the scale of the problem and the threat that it poses here and abroad; costs of medicines; length of treatment; access to medicines; what steps the UK, through DFID, is taking to help tackling growing rates of the more complex form of the disease in developing countries; the importance of R&D into new tools to tackle TB; and support from the UK for the Global Fund to fight AIDS, Tuberculosis and Malaria, which accounts for over 82% of international financing towards TB.

Aim of the inquiry

The APPG is producing a short report building on the Parliamentary Office of Science Technology Note on drug-resistant TB (pdf) published in July 2012. POST is Parliament’s in-house source of independent, balanced and accessible analysis of public policy issues related to science and technology. The note examines the extent of, and risks posed by, drug-resistant TB as well as an overview of UK and international TB surveillance, research into treatments and policy options to limit infections.

It is not the role of POST to provide recommendations in reports that it publishes. It is for this reason that the APPG is seeking views on the current challenges of DR-TB in the UK and in developing countries – as defined in the 4 page note – with specific attention paid to the current and future response of the UK Government.

The final report will be submitted to the Departments for International Development (DFID) and Health (DH) and used to inform the APPG’s work in this area going forward.

Information on written and oral evidence

The initial ‘written call for evidence’ phase of the APPG on Global TB’s inquiry into drug-resistant TB (DR TB) concluded in September 2012. The group received over 30 responses from CSO’s, multilateral organisations, Academics and key TB experts.

The second ‘oral evidence’ phase of the inquiry involved four ‘hearings’ – two focusing on the UK and two on the global burden of DR-TB – where members of the group explored in more detail some of the issues emerging from the written evidence and POST note.

Report publication

The final report is due to be launched ahead of World TB Day (24th March), and a meeting with the Parliamentary Under Secretary of State for International Development, Lynne Featherstone MP, is being scheduled to discuss the findings and recommendations.

If you want to know more about the work of the All-Party Parliamentary Group on Global Tuberculosis, visit www.appg-tb.org.uk.

‘The end of the global AIDS epidemic is within our reach’ – MPs debate HIV in developing countries

Just before the Christmas break, Pauline Latham MP (Mid Derbyshire, Conservative) secured a Westminster Hall Debate on HIV in developing countries. During a busy and well-attended debate, Ms Latham pointed out that ‘the end of the global AIDS epidemic is within our reach’ and echoed the slogan used by the Stop AIDS Campaign for World AIDS Day: ‘why stop now?’

Why stop now indeed, especially when we have the tools, the science and the knowledge to turn the tide on this epidemic. Pamela Nash MP, Chair of the All-Party Parliamentary Group (APPG) on HIV/AIDS, reiterated this point and stated “We just need to sustain the political will”.

Undoubtedly political will is vital, but there is another important element to sustain, and dare we say scale up, in response to HIV/AIDS – Tuberculosis (TB) co-infection.

TB is the leading cause of death among people living with HIV/AIDS in developing countries, accounting for one in four deaths, with 1.1 million people acquiring TB in 2011. 79% of patients live in sub-Saharan Africa, yet TB does not get the attention or focus warranted by the suffering and death it causes. Why is this the case?

As Nick Herbert MP, the Conservative member for Arundel and the South Downs and a founding member of the APPG on Global Tuberculosis explained whilst speaking in the debate:

“It is striking that the diagnostic ability and treatment for HIV are much further ahead than they are for TB, yet TB is a more easily and cheaply treatable disease. Why is that? It is straightforwardly because HIV is a disease that affected the west, and TB was a disease that the west believed had gone. Its attention was therefore not on it. The resources and money that were invested in necessarily trying to deal with the terrible and growing problem of HIV were not directed in the same way at TB. Therefore, the diagnosis of TB is not as quick as it should be, and the treatments go on for an extended period, with old-fashioned drugs that must be taken on a continuous basis; if they are not taken in that way, the problem of drug-resistant TB arises—and that is a killer and particularly difficult to deal with.”

Mr Herbert also highlighted that of the estimated 9 million people who get ill with TB every year, 3 million go without proper diagnosis or treatment. Put simply, we fail to reach far too many people—often in the poorest, most vulnerable communities—with quality TB care.

We need to accelerate our efforts to tackle TB, and it is clear that we need to think outside the box.  One way of doing this is through TB REACH, a WHO initiative that gives small grants of up to 1 million dollars to find and treat those who don’t have any access to TB diagnosis or treatment, Mr Herbert added.

He also stated that a longer term solution to tackling TB would be the creation of a new vaccine that could tackle both normal and drug-resistant strains of the disease. This would have implications not only for developing countries, but also for us here in the UK, where rates of TB infection continue to rise.

The importance and contribution of the Global Fund to Fight AIDS, Tuberculosis and Malaria to tackling both HIV and TB was widely recognised by members, as were the wider developmental benefits accrued from continued investment in fighting the three diseases.

Responding to the points raised, the Parliamentary Under-Secretary of State for International Development Lynne Featherstone MP acknowledged the two points raised by Mr Herbert in relation to the TB REACH programme and on vaccination, both of which she said she would consider further. The Minister also highlighted that DFID’s support for TB research includes £205 million to the Global Alliance for TB Drug Development, and £14 million to the Tropical Disease Research Programme.

Ms Featherstone concluded the session by stating: “It is heartening to see so many Members who genuinely hold HIV as a priority and will pursue the wonderful goal of zero infections”.

Launch of ‘TB Voices Report’ and WHO Action Plan to combat drug resistant TB

“Each year that passes it becomes more and more difficult to combat these epidemics effectively, thus the action should be taken here and now.”

- Elena, Ukraine (Current TB patient,Tuberculosis – Voices in the fight against the European epidemic‘ report)

This week highlights some important steps in combating TB and in raising TB awareness, marking a shared commitment in tackling the disease, particularly with regard to drug resistant TB. Yesterday morning at a press conference in London, the WHO Europe unveiled an Action Plan to tackle multi-drug and extensively drug resistant TB in the WHO European region. WHO Europe will be presenting the Plan for endorsement this week at the WHO Europe Regional Committee meeting being held in Baku, Azerbaijan.

The Plan aims to contain the spread of drug-resistant TB by achieving universal access to prevention, diagnosis and treatment in all Member States in the WHO European Region by 2015. This also formed part of discussions on drug resistant TB at the All-Party Parliamentary Group on Global Tuberculosis meeting later in the afternoon.

To coincide with this event TB Europe Coalition and ACTION launched their report: ‘Tuberculosis – Voices in the fight against the European epidemic‘. This report aims to give real insight into the lives of those affected by TB, beyond the statistics and through the lens of the human story.

“When illness hits it breaks a family – not only because of the finances required, but also because of the sheer humiliation felt in being poor.” – Brian Douglas, Director of the Romanian Children’s Humanitarian Foundation

Although a global epidemic, this report focuses on European cases of TB to challenge widespread myths and highlight a growing European problem. Case studies offer personal insight into the lives of those affected and ignite the fight against disease by telling the human side of the story as well as giving prominence to the voices of marginalised groups.

Patients, health care professionals and advocates in seven European countries speak out about their experiences, achievements and the challenges faced in tackling this global epidemic. Those interviewed address the need to sustain political will and financial investment as well as emphasizing how much work still needs to be done closer to home.

New coordinator of the All-Party Parliamentary Group on Global Tuberculosis appointed

Simon Logan has recently been appointed to the position of coordinator of the APPG on Global TB, taking over from the work of Mike Smith who is moving into a role in Oxfam.

Commenting on his appointment, Simon said:

“I am delighted to take up the position of coordinator of the All-Party Parliamentary Group on Global Tuberculosis.

I recently returned from travelling, which gave me a new perspective on where I would like to dedicate my time.  Seeing the poverty and difficulties faced by people on a daily basis in developing countries I had the privilege travelling in gave me fresh perspective and focus on working in the Not for Profit sector.  When I saw the opportunity to work with the APPG on Global TB I knew I could help tackle this preventable, treatable and curable disease and was delighted when I was offered the position. Continue reading

APPG on Global TB is looking for a new Coordinator

We are sorry to announce that Mike Smith, the Coordinator of the All-Party Parliamentary Group on Global TB, based at RESULTS UK, will be leaving us next month for a new role. The APPG has hugely benefited from his support over the last year – Mike was key in rebuilding the APPG following the election which left so many existing members unable to continue, and his dedication and professionalism have been without peer. We will be sorry to see him go.

This means that the APPG is currently looking to recruit a new Coordinator who will take over this role working with parliamentarians to influence this important international development and public health issue.

Tuberculosis is a curable disease which kills 1.7million people every year, mostly in the poorest countries in the world. TB rates in the UK have also been increasing in recent decades. The APPG on Global TB works to raise the profile of the global TB epidemic (including in the UK) and to help accelerate efforts to meet Millennium Development Goal targets on TB.

The position will involve working with Officers and other members of the APPG to raise the profile of TB in Parliament and make tackling TB a priority for the UK. It will involve, but will certainly not be limited to, the day-to-day running of the group, generating interest among parliamentarians, identifying opportunities to influence policy and helping to deliver parliamentary campaigns.

The ideal candidate for the post will have experience of working in the UK Parliament, particularly co-ordinating the work of Parliamentary Groups; excellent project management and communication skills; and, of course, a passion and commitment to the cause of eradicating TB globally and in the UK.

For full details on this post and how to apply, please see the job advertisement on CharityJob here.

RESULTS UK meets with international Parliamentarians at the IAS

During this year’s International AIDS Conference in Vienna, RESULTS UK, in partnership with the All-Party Parliamentary Group on HIV and AIDS, organised a round table discussion with Parliamentarians and NGOs from around the world to discuss how to maximise and leverage the powerful role that Parliamentarians play across the world in the fight against HIV/AIDS and TB. Continue reading

Dissolved but not dead: The work of the UK APPG on Global TB during the general election campaign

The general election has been called and MPs have left Westminster’s corridors of power to canvass for votes in suburbs, shires and regions across the UK.  Parliament has been dissolved, and so the parliamentary work of the All Party Parliamentary Group on Global TB has ceased until after the election.  But sadly this doesn’t mean that the work of the Group’s Secretariat stops – no afternoons spent surfing the web and sipping cups of tea!  While the Group’s MPs have now all returned to campaign in their constituencies, the APPG is looking towards after the election when the House of Commons returns to form the new Parliament. Continue reading

Impressive press coverage on World TB Day

Today is World TB day, a date that marks the announcement, in 1882 by Dr Robert Koch, of the discovery of the TB bacillus which causes Tuberculosis.

There has been impressive UK media coverage throughout the day, drawing public attention to the global epidemic of TB and the efforts to eliminate the disease. Below are links to a number of the UK articles marking World TB day. Do get commenting on these items to make sure as much coverage as possible is generated!

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